Dr Emma Lidington, PhD

Profile

I joined the Cancer Prevention Trials Unit (previously at King’s College London) in February 2022 as a post-doctoral research associate in behavioural science. My background is in psychobiology and public health research. I did my PhD on the care experiences and supportive care needs of young adults with cancer. I also conducted similar work focusing on the development and use of patient-reported outcomes in cancer research and routine care and is currently the Publications Editor of the EORTC Quality of Life Group.

I moved from the Royal Marsden NHS Foundation Trust where I was a trial manager in a new team implementing a system for digitally collecting patient-reported outcomes in clinical trials.

My research now focuses on using behavioural science to understand and encourage participation in cancer prevention clinical trials and the acceptability and psychological impact of new cancer screening programmes. 

Research

Research Interests:

•    Understanding the psychological impact and acceptability of new screening tests and programmes, for example in relation to a new at-home urine testing kit for bladder cancer and the new capsule sponge test for oesophageal cancer
•    Understanding barriers and facilitators to uptake of new screening tests and programmes
•    Exploring the use of patient-reported outcomes to assess relevant psychological concepts
•    Understanding and improving the inclusivity of population-based cancer screening trials

Publications

• Peeters NJMCV, Georgopoulou S, Kulakowski R et al. (2024). Patient activation of breast cancer patients: results from the longitudinal ADAPT Study. nameOfConference

  
  

  DOI: 10.1080/28352610.2024.2409286

  
  

  QMRO: qmroHref
• Peeters NV, Husson O, Kulakowski R et al. (2024). 272P Evaluating a digital tool for supporting people affected by breast cancer: A prospective randomised controlled trial - The ADAPT study. nameOfConference

  
  

  DOI: 10.1016/j.esmoop.2024.103330

  
  

  QMRO: qmroHref
• Pilz MJ, Rothmund M, Lidington E et al. (2023). Content comparison of the EORTC CAT Core, SF‐36, FACT‐G, and PROMIS role and social functioning measures based on the International Classification of Functioning, Disability and Health. nameOfConference

  
  

  DOI: 10.1002/pon.6188

  
  

  QMRO: qmroHref
• Schut AW, de Bruin LE, de Rooij BH et al. (2023). Physical symptom burden in patients with desmoid‐type fibromatosis and its impact on health‐related quality of life and healthcare use. nameOfConference

  
  

  DOI: 10.1002/cam4.5985

  
  

  QMRO: qmroHref
• Rothmund M, Pilz MJ, Egeter N et al. (2023). Patient‐reported outcome measures for emotional functioning in cancer patients: Content comparison of the EORTC CAT Core, FACT‐G, HADS, SF‐36, PRO‐CTCAE, and PROMIS instruments. nameOfConference

  
  

  DOI: 10.1002/pon.6109

  
  

  QMRO: qmroHref
• Schut A-R, Lidington E, Timbergen M et al. (2023). Unraveling Desmoid-Type Fibromatosis-specific Health-Related Quality of Life: Who Is at Risk for Poor Outcomes. nameOfConference

  
  

  DOI: 10.1016/j.ejso.2022.11.192

  
  

  QMRO: qmroHref
• Schurr T, Loth F, Lidington E et al. (publicationYear). Patient-reported outcome measures for physical function in cancer patients: content comparison of the EORTC CAT Core, EORTC QLQ-C30, SF-36, FACT-G, and PROMIS measures using the International Classification of Functioning, Disability and Health. nameOfConference

  
  

  DOI: 10.1186/s12874-022-01826-z

  
  

  QMRO: qmroHref
• Lidington E, Hogan H, Gandolfi A et al. (publicationYear). Assessing the collection and reporting of patient-reported outcome data in interventional cancer trials: a single institution, retrospective systematic evaluation. nameOfConference

  
  

  DOI: 10.1186/s41687-022-00529-9

  
  

  QMRO: qmroHref
• Schut A-RW, Lidington E, Timbergen MJM et al. (publicationYear). Unraveling Desmoid-Type Fibromatosis-Specific Health-Related Quality of Life: Who Is at Risk for Poor Outcomes. nameOfConference

  
  

  DOI: 10.3390/cancers14122979

  
  

  QMRO: qmroHref
• Lidington E, Giesinger JM, Janssen SHM et al. (2022). Identifying health-related quality of life cut-off scores that indicate the need for supportive care in young adults with cancer. nameOfConference

  
  

  DOI: 10.1007/s11136-022-03139-6

  
  

  QMRO: qmroHref
• den Hollander D, Lidington E, Singer S et al. (2022). ‘I thought I had fibroids, and now I don’t’: a mixed method study on health-related quality of life in uterine sarcoma patients. nameOfConference

  
  

  DOI: 10.1186/s12955-022-01971-5

  
  

  QMRO: qmroHref
• Darlington A-S, Sodergren SC, Lidington E et al. (2022). Quality of Life in Adolescents and Young Adults with Cancer. nameOfConference

  
  

  DOI: 10.1007/978-3-030-84702-9_17

  
  

  QMRO: qmroHref
• Casillas JN, Bolano C, Schwartz LF et al. (2022). A Survivorship Educational Tool for Latino Adolescent and Young Adult Cancer Survivors. nameOfConference

  
  

  DOI: 10.1177/15248399211061709

  
  

  QMRO: qmroHref
• Schut A-RW, Lidington E, Timbergen MJM et al. (publicationYear). Development of a Disease-Specific Health-Related Quality of Life Questionnaire (DTF-QoL) for Patients with Desmoid-Type Fibromatosis. nameOfConference

  
  

  DOI: 10.3390/cancers14030709

  
  

  QMRO: qmroHref
• van Leeuwen M, Kieffer JM, Young TE et al. (2023). Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire. nameOfConference

  
  

  DOI: 10.1007/s11764-021-01160-1

  
  

  QMRO: qmroHref
• Casillas JN, Ganz PA, Kahn K et al. (2021). Improving Cancer Survivorship Care for Latino Adolescent, Young Adult Survivors through Community-Partnered Participatory Research.. nameOfConference

  
  

  DOI: 10.35844/001c.29534

  
  

  QMRO: qmroHref
• van Eck I, Hollander DD, Lidington E et al. (publicationYear). Health-Related Quality of Life Issues Experienced by Thoracic and Breast Sarcoma Patients: A Rare and Understudied Group. nameOfConference

  
  

  DOI: 10.3390/jcm10225334

  
  

  QMRO: qmroHref
• Soomers VLMN, Lidington E, Sirohi B et al. (publicationYear). The Prolonged Diagnostic Pathway of Young Adults (Aged 25–39) with Cancer in the United Kingdom: Results from the Young Adult Cancer Patient Journey Study. nameOfConference

  
  

  DOI: 10.3390/jcm10204646

  
  

  QMRO: qmroHref
• Lidington E, Darlington A-S, Din A et al. (publicationYear). Describing Unmet Supportive Care Needs among Young Adults with Cancer (25–39 Years) and the Relationship with Health-Related Quality of Life, Psychological Distress, and Illness Cognitions. nameOfConference

  
  

  DOI: 10.3390/jcm10194449

  
  

  QMRO: qmroHref
• Schut A-RW, Timbergen MJM, Lidington E et al. (publicationYear). The Evaluation of Health-Related Quality of Life Issues Experienced by Patients with Desmoid-Type Fibromatosis (The QUALIFIED Study)—A Protocol for an International Cohort Study. nameOfConference

  
  

  DOI: 10.3390/cancers13133068

  
  

  QMRO: qmroHref
• Lidington E, Vlooswijk C, Stallard K et al. (2021). ‘This is not part of my life plan’: A qualitative study on the psychosocial experiences and practical challenges in young adults with cancer age 25 to 39 years at diagnosis. nameOfConference

  
  

  DOI: 10.1111/ecc.13458

  
  

  QMRO: qmroHref
• Kaal SEJ, Lidington EK, Prins JB et al. (publicationYear). Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals. nameOfConference

  
  

  DOI: 10.3390/jcm10091833

  
  

  QMRO: qmroHref
• Lidington E, Darlington AS, Vlooswijk C et al. (2021). Beyond Teenage and Young Adult Cancer Care: Care Experiences of Patients Aged 25–39 Years Old in the UK National Health Service. nameOfConference

  
  

  DOI: 10.1016/j.clon.2021.02.010

  
  

  QMRO: qmroHref
• Dumas L, Lidington E, Appadu L et al. (publicationYear). Exploring Older Women’s Attitudes to and Experience of Treatment for Advanced Ovarian Cancer: A Qualitative Phenomenological Study. nameOfConference

  
  

  DOI: 10.3390/cancers13061207

  
  

  QMRO: qmroHref
• Lidington EK, Smrke A, Ingley KM et al. (2020). Cancer care and well‐being in adolescents and young adults during the coronavirus disease 2019 pandemic: A UK sarcoma perspective. nameOfConference

  
  

  DOI: 10.1002/cncr.33215

  
  

  QMRO: qmroHref
• Younger E, Smrke A, Lidington E et al. (publicationYear). Health-Related Quality of Life and Experiences of Sarcoma Patients during the COVID-19 Pandemic. nameOfConference

  
  

  DOI: 10.3390/cancers12082288

  
  

  QMRO: qmroHref
• Staal DP, Vlooswijk C, Mols F et al. (2021). Diagnosed with a common cancer at an unusual age: causal attributions of survivors of adolescent and young adult colorectal cancer. nameOfConference

  
  

  DOI: 10.1007/s00520-020-05502-0

  
  

  QMRO: qmroHref
• Lidington E, McGrath SE, Noble J et al. (2020). Evaluating a digital tool for supporting breast cancer patients: a randomized controlled trial protocol (ADAPT). nameOfConference

  
  

  DOI: 10.1186/s13063-019-3971-6

  
  

  QMRO: qmroHref
• Casillas JN, Kao RL, Macadangdang J et al. (2018). Improving Fertility Preservation Discussions for Adolescent and Young Adult Male Oncology Patients. nameOfConference

  
  

  DOI: 10.1080/10463356.2018.1502976

  
  

  QMRO: qmroHref
• Husson O, Lidington E, Younger E et al. (2018). Young adults: a unique group in cancer epidemiological research. nameOfConference

  
  

  DOI: 10.1016/s1470-2045(18)30029-9

  
  

  QMRO: qmroHref
• Casillas J, Goyal A, Bryman J et al. (2017). Development of a text messaging system to improve receipt of survivorship care in adolescent and young adult survivors of childhood cancer. nameOfConference

  
  

  DOI: 10.1007/s11764-017-0609-0

  
  

  QMRO: qmroHref